As many sufferers of IH are aware little original reseach is being undertaken on the disorder; all of our medication is repurposed from Narcolepsy treatments and nothing addresses our specifc needs.
However a couple of us IH patients have decided to do our own research based upon a personal situation for an unrelated disorder.
This led us to look at the role of adenosine and how our brain manages it, in relation to IH. We felt that Adenosine mismanagement was the cause of our sleep drunkenness and loss of daytime alertness, and wanted to test that hypothesis out. Whilst it was only undertaken by one person so far, the results have been encouraging, though we are mindful that much more work needs to be done in this sphere and hope this kicks off novel research and medications specifically for us.