I've been told - indirectly - that this site is just my view on IH and its presentation (and that other opinions exist on the nature and management of IH).  I would agree that it is, but it's based on my experience, and the information from both HA and HF, and from my own consultant.  We all can't be wrong; [...]

The Arise2 trial in the USA is one of the first to look at a new treatment for Idiopathic Hypersomnia, and is still recruiting participants across mainland USA. Pentetrazol - known as BTD-001 - has already seen limited trials for Narcolepsy Type 2, and works as a GABA antagonist (or blocker). The NHS are monitoring the trial too which is [...]

IHAW is from the 2nd to the 9th September this year. This is the 7th year of IHAW and its going from strength to strength, developing awareness of the disease, and showing that even with all of the issues, people with Idiopathic Hypersomnia still have goals to attain, and much to contribute.